My childhood was healthy, until I had my first tonic-clonic seizure at the age of 15. I have been fortunate to have only had three seizures since being diagnosed. I thought that I was an informed patient about epilepsy. I have responded to treatment with medication and epilepsy didn’t affect my life, except for minor side effects through the years.

verything changed more than 12 years ago, when I gave birth to my first child. Epilepsy began affecting my life on a daily basis and I realized how uninformed I had been about epilepsy. Research now shows that the anti-seizure medication I was prescribed while pregnant with my first child can cause developmental delays, characterized by low verbal IQ in children when exposed in utero. I have been successful in that my seizures respond to epilepsy treatment, but I was not prepared for how my epilepsy would impact my son’s life.