Hi! My name is Emma and I was diagnosed with epilepsy when I was seven years old. Before being diagnosed I’d had two convulsions, but it was a tonic clonic seizure that kicked off more serious investigations. For the next ten years I was affected by focal seizures during the night.
I always knew when they were coming. I would get a weird feeling in the back of my throat, strange tastes in my mouth and tingling sensations in my body. It’s scary knowing you're about to have a seizure; I would just hide under my duvet and wait for it to be over. I felt as if I was out of my body and looking down on my self. I couldn’t speak and felt like I had no control, but would always remain conscious and was fully aware they were happening. During seizures, I would sometimes put a thumb up, just to let my Mum know that I was OK – naturally my family would be worried.