Zeyjan's Story

'It was only by chance that I discovered I had epilepsy,' she says. 'After my first tonic clonic seizure, my GP sent me for an EEG (electroencephalogram) but I was never called for a follow up appointment so no-one ever gave me the results.

'It was only when I was having a routine B12 injection for my pernicious anaemia, that the nurse looked at my notes and told me I had epilepsy. I was really shocked.

'I did not know if I had photosensitive epilepsy or what the diagnosis meant. Nobody explained to me about medication or safety or anything about how epilepsy could impact on my life. I felt very much on my own and without any support. I was completely in the dark.